Abstract
This paper explores the current policies relating to fertility preservation coverage for women who receive a cancer diagnosis during their childbearing years. At the time this paper was written, there was no federal mandate in the United States for insurance companies to cover oncofertility services, and only two states had secured coverage for private insurance holders. METHODS In-depth, semi-structured interviews were conducted with ten oncofertility advocates. Dedoose qualitative data software was used to extract themes in the data following coding and analysis. RESULTS Five themes were identified from the resulting data: 1.) Personal experience was a common point of entry into advocacy; 2.) Advocacy strategies were influenced by existing state legislation and advocates' professions; 3.) Barriers to advocacy efforts include cost, politics, unstable insurance markets, and education; 4.) Legislation is seen as a reflection of social values; and 5.) Patient quality of life plays an integral role in legislative arguments. The findings of this study will inform oncologists and social workers of the current policies surrounding oncofertility for female cancer patients and the gaps in coverage that are being addressed by advocates. This will enable professionals to more inclusively address patients’ needs regarding oncofertility and its corresponding behavioral health concerns.